I was touched by this book, by a mom who develops ALS at age 44. Upon her diagnosis, she knew that she had around 3 years to live, and would progressively lose the ability to walk, type, feed herself, and speak.
She wrote about how some friends dropped her, because they were uncomfortable with her wheelchair and slurred speech. She was furious at their desertion. But she decided to intentionally focus her attention towards the friends who stepped up.
Every day, friends stopped by with home-cooked food, to help her kids, or to read passages of her book.
She typed the book using just her thumb on her iPhone. Later she could no longer move her thumb and she wrote an epilogue using nose-tracking software.
There was a sweet quote from her husband of 20 years. He dressed her, fed her, and helped her go to the bathroom. He said, "You're not a burden. The least I can do for you is everything."
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